Preliminary Report Out from Project HealthDesign Grants

Robert Wood Johnson Foundation convened a final workshop for its Pioneer program Project HealthDesign. The current focus of the program is on exploring the value and the challenges associated with the collection and use of "observations of daily living," or data associated with food, sleep, pain, activity, mood and other descriptors of people's day-to-day experiences, to improve their health (see www.projecthealthdesign.org for full details on the program).

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  1. The workshop, which was held at and facilitated by the Vanderbilt Center for Better Health in Nashville, brought together members from each of the project teams, the Project HealthDesign national program office at the University of Wisconsin-Madison, the program's national advisory committee, RWJF staff and other program participants and a small group of invited guests. The five project teams are conducting demonstration projects in which patients with multiple chronic conditions gather observations of daily living (ODLs), either actively or passively (through sensors). Patients get feedback on the data and clinicians are engaged (in different ways, depending on the projects) in reviewing, interpreting and/or acting on the data. The projects have either completed or are far along in their intervention periods but have not completed their evaluations, so all specific results presented were preliminary (and not ready for distribution). However, we encouraged participants to share some of the general observations and issues raised by the reports. The highlight of the morning session was the reports from each of teams to the advisory committee:
  2. After a brief overview for our invited guests, in which I made this point:
  3. we got to drill down with the teams on a variety of issues:
  4. That was it for day one, save for this reminder from advisor Susannah Fox:
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