#RareDiseaseDay photo challenge

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  1. Join our #RareDiseaseDay photo challenge! 🎉 In the run up to Rare Disease Day on 28 February 2017, we're asking patients, their families, clinicians, patient groups and anyone else interested in #raredisease to post a photo a day based on the themes we've provided to help raise awareness of living with a rare disease. Prizes for the best photos and most committed participants. 🏆Click the link in our bio for more information! 📷 -
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#rarediseaseday2017 #chronicillness #rare #eds #ehlersdanlossyndrome #chronic #genetic #photochallenge
    Join our #RareDiseaseDay photo challenge! 🎉 In the run up to Rare Disease Day on 28 February 2017, we're asking patients, their families, clinicians, patient groups and anyone else interested in #raredisease to post a photo a day based on the themes we've provided to help raise awareness of living with a rare disease. Prizes for the best photos and most committed participants. 🏆Click the link in our bio for more information! 📷 - - - #rarediseaseday2017 #chronicillness #rare #eds #ehlersdanlossyndrome #chronic #genetic #photochallenge
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  3. A smiley face to brighten your Monday
#balloons #your_life_etc #photo_smiles_world #nothingisordinary #everything_imaginable #ig_creativepics #capturing_britain_humour #shared_joy #rarediseaseday @rarediseaseuk
    A smiley face to brighten your Monday #balloons #your_life_etc #photo_smiles_world #nothingisordinary #everything_imaginable #ig_creativepics #capturing_britain_humour #shared_joy #rarediseaseday @rarediseaseuk
  4. #rarediseaseday @rarediseaseuk 
Living with PSC! Living life to the full! While I'm relatively well, I make everyday count. Making memories with my beautiful family.
    #rarediseaseday @rarediseaseuk Living with PSC! Living life to the full! While I'm relatively well, I make everyday count. Making memories with my beautiful family.
  5. Got a very tired but smiley wee man tonight...he has had a slightly better day today at school 😊#tiredboy #rarediseaseday #smileyselfie @rarediseaseuk
    Got a very tired but smiley wee man tonight...he has had a slightly better day today at school 😊#tiredboy #rarediseaseday #smileyselfie @rarediseaseuk
  6. #rarediseaseday @rarediseaseuk 
Photo Challenge!
Day 1 : Smiley Selfie

I said at the beginning of the year I would try and raise more awareness of the #autoimmunedisease #sarcoidosis which my husband suffers from.

One in every 10,000 people suffer from this disease, which has no cure
    #rarediseaseday @rarediseaseuk Photo Challenge! Day 1 : Smiley Selfie I said at the beginning of the year I would try and raise more awareness of the #autoimmunedisease #sarcoidosis which my husband suffers from. One in every 10,000 people suffer from this disease, which has no cure
  7. Having a rare disease like PSC can mean spending time in hospital. Here's Gary, a PSC patient who obviously knows how to keep things light hearted during hospital stays! #RareDiseaseDay #pscsupportuk #primarysclerosingcholangitis #psc #photochallenge
    Having a rare disease like PSC can mean spending time in hospital. Here's Gary, a PSC patient who obviously knows how to keep things light hearted during hospital stays! #RareDiseaseDay #pscsupportuk #primarysclerosingcholangitis #psc #photochallenge
  8. Day 1 of @rarediseaseuk  #raredisease  Day photo challenge
@ataxiaandme #ataxia #raredisease #Movement disorders 
#Wales 
www.ataxiaandme.org
    Day 1 of @rarediseaseuk #raredisease Day photo challenge @ataxiaandme #ataxia #raredisease #Movement disorders #Wales www.ataxiaandme.org
  9. Lachlan has periodic hypothermia and this is his smiley selfie #RareDiseaseDay
    Lachlan has periodic hypothermia and this is his smiley selfie #RareDiseaseDay
  10. @rarediseaseuk #RareDiseaseDay #PhotoChallenge #RareDiseasePhotoChallenge #Day1 #SmileySelfie #BadHair
    @rarediseaseuk #RareDiseaseDay #PhotoChallenge #RareDiseasePhotoChallenge #Day1 #SmileySelfie #BadHair
  11. #RareDiseaseDay Day 1 - smiley selfie. Cameron has Osteogenesis Imperfecta (Brittle Bones). During this month we'll be taking part in @rarediseaseuk photo challenge to help awareness of those conditions that people may not be aware of.
    #RareDiseaseDay Day 1 - smiley selfie. Cameron has Osteogenesis Imperfecta (Brittle Bones). During this month we'll be taking part in @rarediseaseuk photo challenge to help awareness of those conditions that people may not be aware of.
  12. #RareDiseaseDay
I don't normally do these and I'm not a huge photo fan but I have a rare condition and for people who know, hopefully March 2017 I will hopefully 100% which one I have because there is question over about 2 conditions. 
Conditions can be hidden or seen, we over come barriers all the time and I don't say this often about myself but I am proud of what I've been able to overcome because of my difficulties. 
@rarediseaseuk
    #RareDiseaseDay I don't normally do these and I'm not a huge photo fan but I have a rare condition and for people who know, hopefully March 2017 I will hopefully 100% which one I have because there is question over about 2 conditions. Conditions can be hidden or seen, we over come barriers all the time and I don't say this often about myself but I am proud of what I've been able to overcome because of my difficulties. @rarediseaseuk
  13. I'm raising awareness about rare diseases and their impact on patients with the Rare Disease Day photo challenge. One photo each day of February. Today's theme - smiley selfie! #rarediseaseday #edsawareness #eds #zebra #zebrastrong @rarediseaseuk
    I'm raising awareness about rare diseases and their impact on patients with the Rare Disease Day photo challenge. One photo each day of February. Today's theme - smiley selfie! #rarediseaseday #edsawareness #eds #zebra #zebrastrong @rarediseaseuk
  14. Not a very smiley #smileyselfie for #rarediseasedayphotochallenge 
Day 1. But its a start... 😏📸
#exceptiontotherule 
#rarediseaseday
#behcetsdisease #behcetsawareness
#autoimmune 
#autoinflammatory
#chronicillness
> @rarediseaseuk <
    Not a very smiley #smileyselfie for #rarediseasedayphotochallenge Day 1. But its a start... 😏📸 #exceptiontotherule #rarediseaseday #behcetsdisease #behcetsawareness #autoimmune #autoinflammatory #chronicillness > @rarediseaseuk <
  15. In the run up to Rare Disease Day I am taking part in @rarediseaseuk's instagram challenge! Here is my day 1 submission - a smiley selfie. Hello! My name is Amy and I suffer from Intracranial Hypertension! #RareDiseaseDay #awareness
    In the run up to Rare Disease Day I am taking part in @rarediseaseuk's instagram challenge! Here is my day 1 submission - a smiley selfie. Hello! My name is Amy and I suffer from Intracranial Hypertension! #RareDiseaseDay #awareness
  16. #RareDiseaseDay @rarediseaseuk Day 1 smiley selfie. I have Urticarial vasculitis and angioedema
    #RareDiseaseDay @rarediseaseuk Day 1 smiley selfie. I have Urticarial vasculitis and angioedema
  17. #rarediseaseday Hi, don't worry, I'm still posting about books, but this month I'm also doing a challenge throughout February to promote Rare Disease Day. I have Vasculitis, and this is my Smiley Selfie.
"Vasculitis means "inflammation of the blood vessels".
Inflammation is your immune system's natural response to injury or infection. It causes swelling, and can help the body deal with invading germs.
But in vasculitis, for some reason the immune system attacks healthy blood vessels, causing them to become swollen and narrow. This may be triggered by an infection or medication, although often the cause is unknown.
Vasculitis can range from a minor problem that just affects the skin, to a more serious illness that causes problems with organs such as the heart or kidneys."
    #rarediseaseday Hi, don't worry, I'm still posting about books, but this month I'm also doing a challenge throughout February to promote Rare Disease Day. I have Vasculitis, and this is my Smiley Selfie. "Vasculitis means "inflammation of the blood vessels". Inflammation is your immune system's natural response to injury or infection. It causes swelling, and can help the body deal with invading germs. But in vasculitis, for some reason the immune system attacks healthy blood vessels, causing them to become swollen and narrow. This may be triggered by an infection or medication, although often the cause is unknown. Vasculitis can range from a minor problem that just affects the skin, to a more serious illness that causes problems with organs such as the heart or kidneys."
  18. A smiley selfie from me to raise awareness about rare diseases and their impact on people. #rarediseaseday @rarediseaseuk #eds #zebra #zebrastrong #ehlersdanlossyndrome
    A smiley selfie from me to raise awareness about rare diseases and their impact on people. #rarediseaseday @rarediseaseuk #eds #zebra #zebrastrong #ehlersdanlossyndrome
  19. My #smileyselfie pic for #day1 of the #rarediseaseday challenge...is a throwback to Christmas Day! A smiley FAMILY selfie 🤳❣️☺️ @rarediseaseuk #crohnsdisease #endometriosis #behcetsdisease #iamtheface #invisibleillness #invisibledisease #crohns #fighter #selfie #family #challenge #familyof5 #boysoutnumbered
    My #smileyselfie pic for #day1 of the #rarediseaseday challenge...is a throwback to Christmas Day! A smiley FAMILY selfie 🤳❣️☺️ @rarediseaseuk #crohnsdisease #endometriosis #behcetsdisease #iamtheface #invisibleillness #invisibledisease #crohns #fighter #selfie #family #challenge #familyof5 #boysoutnumbered
  20. Day 1: Smiley selfie. Here's one from September, back when I had purple hair, matched with a photo from a few days ago. #rarediseaseday #rarediseasedayphotochallenge @rarediseaseuk 📸🏆 #ehlersdanlossyndrome #eds3 #edsht #gastroparesis #orthostaticintolerance #dysautonomia #chronicmigraine #migraine #chronicpainsyndrome #spoonie #lifeofaspoonie #spoonielife
    Day 1: Smiley selfie. Here's one from September, back when I had purple hair, matched with a photo from a few days ago. #rarediseaseday #rarediseasedayphotochallenge @rarediseaseuk 📸🏆 #ehlersdanlossyndrome #eds3 #edsht #gastroparesis #orthostaticintolerance #dysautonomia #chronicmigraine #migraine #chronicpainsyndrome #spoonie #lifeofaspoonie #spoonielife
  21. Smiley selfie for Day 1 of @rarediseaseuk #rarediseaseday photo challenge. This is Benjamin, his disease is so rare it's #undiagnosed!
    Smiley selfie for Day 1 of @rarediseaseuk #rarediseaseday photo challenge. This is Benjamin, his disease is so rare it's #undiagnosed!
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