- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 20:14:53The idea of embroidering my #mecfs symptoms came to me on a day when I was having extreme paresthesia. I was doing a mindfulness meditation to help me psychologically deal with all the tingling in my body.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 20:17:05As I separated out all the various sensations that made up the paresthesia, my mind's eye started seeing the lines of paresthesia as lines of embroidery.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 20:27:47After I started posting these images, people with paresthesias responded by saying that my depictions were accurate to their sensations as well.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:22:18The outline of the woman is from Vesalius but all the lines of myalgia and paresthesia are freehand. Interestingly, by the time I finished this piece my symptoms had improved significantly. I had started seeing an Integrative Medicine doctor and finally had some treatment.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:25:56For those of you unfamiliar with #mecfs , there is currently no real medical treatment, and very vague diagnostic criteria. Many people go years without diagnosis. I was lucky that my GP recognized the signs early on and then ordered a battery of tests to rule out other causes.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:28:43My current treatment for #mecfs is TCM (Traditional Chinese Medicine acupuncture and herbs), supplements to support mitochondrial function, yoga, meditation, breath work, and a ketogenic diet. I also pace myself very carefully. Always. And use mobility aids when I go out.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:31:19
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:37:48This overstimulation manifests itself as extreme sensitivity to sound and vibration. It's not misophonia, which is sometimes called "sound rage," it's an acute sensitivity that causes very real pain in my limbs and tongue.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:39:17Low rumbling noises are especially bad, and even after I am away from those noises, I can feel the vibrations just under my skin, especially in my back, for hours afterwards. This also comes with brain fog and fatigue.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 21:41:00This sound sensitivity is improving, and I've been doing a bit of ad hoc desensitization by listening to music that contains these sounds for short periods of time. As a musician, this was one of the more distressing symptoms at first. But I have improved.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 22:08:58With PEM, when I overexert myself, it's like my body tries to recharge, but instead it gets all confused and sinks back down. I think the image above describes it much better than my words.
- — IAmSciArt (@IAmSciArt)Fri, Dec 01 2017 22:11:44And with all that, I'm very much in need of a break! I'm going to work on my bronchi embroidery which I didn't get to do yesterday. Also, a reminder that this is a rocur account and that you can usually find me on my personal account: @lia_pas
My IAmSciArt thread on my ME/CFS symptomatology embroideries Dec 1 2017
byLia Pas35 Views