Living with Friedreich's Ataxia

Friedreich's ataxia (#FA or #FRDA) is a rare inherited disease that causes nervous system damage and movement problems.

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  1. Jordan Howell is an alumnus of the Department of Radio, TV and Film at the University of North Texas.
    In 2001 graduate students in Jordan's documentary editing class, Danish Mumtaz and Przemyslaw Budziszewski asked him if he wanted to appear In their documentary about students with disabilities. After talking for a while, they decided to do a documentary on just Jordan instead. Jordan himself needed 3 hours of college credit for a special project. For the interview he wrote some basic stories plus questions Mumtaz and Budziszewski handled most of the technical work.

    The result is "Everything's Peachy" a documentary in four parts featuring Jordan, his father Allan, and grandfather Frank documenting Jordan's experience living with Friedreich's Ataxia. Below you can find the whole documentary, posted in parts, just look for tweets saying: "Everything is Peachy".
  2. Friedreich's ataxia is named after Nicholaus Friedreich, a German doctor who first described the condition in the 1860s.
  3. Check out the other Tweets and YouTube film links below as well, you'll find blogs and fundraisers, and messages of hope!
  4. With this here Storify item we hope to spread awareness about FA.
  5. Below you'll find more tweets and URLs or YouTube videos focused on Friedreich's Ataxia. Let's help researchers find a cure!
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