#hcsmca

Do stories change anything?

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  1. Preparing for #RareDiseaseDay 2016
  2. T1. How do patient stories impact the rare disease community?
  3. T2. How can we better value patient stories and respond to the insights shared?
  4. T3. What benefits should patients look for from contributing their stories?
  5. T4. What stories are missing from the rare disease community and how can we encourage different voices?
  6. Getting set to chat

  7. Some introductions from around the world

  8. Storytelling theme generates great interest
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