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MedX: Communicating the experience of illness in the digital age (in tweets)

On Sunday, September 7, 2014, Pamela Ressler led a discussion about the benefits and pitfalls of online self-disclosure with Meredith Gould, Colleen Young, and Susannah Fox.

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  1. Communicated the experience of illness in the digital age
  2. The pre-party happened over the past two months as we shared what we planned to say on stage with our communities:
  3. Lisa Bonchek Adams inspired us to create this panel and to know that she was watching -- and wishing us well -- was deeply meaningful to us.
  4. The stage design was breathtaking thanks to Lumenoti, a visual design agency from New York. I think it elevates the conversation to be on such a beautiful set.
  5. Susannah Fox, Pamela Ressler, Meredith Gould, Colleen Young
    Susannah Fox, Pamela Ressler, Meredith Gould, Colleen Young
  6. I was so nervous about this panel that my hands were trembling that morning. We had worked hard and wanted our panel to do justice to the topic. When we gathered back stage, the four of us held hands in a circle for a moment of meditation and I let all the worry go. Maybe we also felt the love being shared on Twitter at that same moment.
  7. And then we dove in. Reading these tweets will give you a taste of our discussion, along with notes shared with me by Peter Mathews, MD, who has 300 wpm typing skills (!!). Stay tuned for (hopefully) lots of follow-up discussions on our blogs and elsewhere.
  8. Pamela Ressler: How might we bridge the abyss of isolationfear that separates those with chronic illness by examining how we examine andcommunicate this experience of dealing with illness
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