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Evolution of online patient communities

From BBS, Compuserve, and list serves to Yahoo and Facebook groups to Inspire, PatientsLikeMe, SmartPatients, the C3N...and <insert your favorite here>


  1. It is Facebook's 10th anniversary this coming week, so my colleagues at the Pew Research Center are gathering data about how that platform has grown and what effect it has had on the world.
  2. Since I view the world through a health lens, I started tweeting a few examples of Facebook's role in health care:
  3. Then, on Saturday, a conversation broke out:
  4. I think it's worth exploring these issues, so I'm first capturing these tweets and then inviting people to talk about it on my blog: