#BTSM Tweetchat July 6, 2014 with Guest National Brain Tumor Society

@NBTStweets was the guest for the July #btsm Tweetchat. Tweeting for @NBTStweets was Dr. Jennifer Helfer, Ph.D., Associate Director of Scientific Operations. Liz Salmi @TheLizArmy was the tweetchat moderator.

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  1. National Brain Tumor Society is working with the FDA, the National Cancer Institute, medical academic researchers, clinicians, and the Jumpstarting Brain Tumor Drug Development Coalition (a group of other brain tumor-focused nonprofits and organizations), with the goal of developing action plans to improve the system for measuring and evaluating potential new treatments. This is a part of our Clinical Trial Endpoints Initiative.

    Researchers, companies, and regulators need to know what patients want in terms of treatment options, and what is affecting a patient’s decision to become involved in the research of these new treatments. National Brain Tumor Society is convening the Jumpstarting Brain Tumor Drug Development Coalition to distribute a survey to patients, survivors and caregivers, so that we may find out more about what you want in terms of treatment options, and what is affecting a patient’s decision to become involved in the research of these new treatments. The results will be presented to a group of researchers, clinicians, biopharmaceutical companies, and policymakers. 
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