- John Powell, Principal Investigator of the Research Programme, introduced the day. He talked about in one generation, digital has shifted every part of our lives, but we haven't yet fully understood or realised the potential of that shift in healthcare. The quote "everything is connected to everything else" informed some of the stunning architecture of recent times, including the Guggenheim Bilbao. As a mindset for architects, it is just as relevant for digital technology too.
- The day started in ernest with Douglas Finlay, Chair of the Lay Panel - a group of people who use services who have a central role in guiding the work of the programme.
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:13:15#InquireUK Lay Panel Chair: we know health charities do research but do we as the public really understand what their research means?
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:20:23#InquireUK Lay Panel Chair: drowning online in institution/practitioner rating, feedback on care/treatments, forums for medical conditions
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:16:03#InquireUK Lay Panel chair remembers as a child, his parents sense of curiosity about how things work - gateway for research involvement!
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:21:32#InquireUK as a patient/carer, what, when and how do we search for information online about healthcare? In a million different ways!
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:18:30#InquireUK Lay Panel chair: getting involved in care for my parents, and the unanswered questions for them started my curiosity in research
- Jenny Newbold, from Cambridge University, presented The tick and the talk: do patients' survey responses relate to their narrated expereince of primary care consultations?
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:36:27Disconnect between the tick and the talk... narrative account of consultation (critical of GP) vs survey (ticking good box) #InquireUK
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:39:53Interesting how patients can talk of a sense of affiliation with the GP practice and individual doctor even if don't go regularly #InquireUK
- — James Munro (@jamesfm55)Wed, Dec 07 2016 10:43:33Why does the tick not match the talk in patient experience? Relationship, loyalty, gratitude, expectation, professional power... #inquireuk
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 10:44:34Power Asymmetry: dependancy, reluctance to criticise free service, justifications for Dr behaviour + pts view of own actions #InquireUK
- — James Munro (@jamesfm55)Wed, Dec 07 2016 10:52:23Fascinating research from Jenny Newbould. Patient may have a poor GP consultation yet rate it as good. Rating as poor is rare #inquireuk
- Malte Ziewitz from Cornell University presented Feedback Stories
- — Patrick Cullen (@patrickwfcullen)Wed, Dec 07 2016 10:59:33
- — Anya de Iongh (@anyadei)Wed, Dec 07 2016 11:06:45
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 11:04:39Newsnight story from 2014 raises question of who is putting patients stories online and clarity of ownership: patients or staff? #InquireUK
- — INQUIRE UK (@INQUIREUK)Wed, Dec 07 2016 11:12:13Feedback online - question of authorship balances with its potential to lead to improvements in care vs pt decisions about care? #InquireUK
On 7th December, the INQUIRE research team held a day workshop to discuss improving NHS quality using internet rating and experiences. It was a chance to reflect on the interim findings of the research and the wider context, challenges and opportunities of online feedback.