On Cost and Cancer in America

A Twitter conversation on the financial devastation that often follows a cancer diagnosis in the US, where treatment is expensive—and even those fortunate to have jobs and health insurance can be crushed by medical debt.

  1. Skimming headlines yesterday, I read a "feel-good" cancer news item making the rounds about a 6-year-old boy in Texas who helped his father pay for cancer treatment by opening a lemonade stand. 
  2. Downright Dickensian.
  3. This should make America feel shame, not feel good: 6yo boy raises $10K via lemonade stand to pay for dad's chemo. on.msnbc.com/I4h2US
  4. Responses flowed in from cancer survivors who have personally experienced the injustice of cancer costs in America.
  5. @chemobrainfog @xeni That's not really that much chemo, either -- 10K worth? People don't know how much cancer costs. LOT$$$$!!!!
  6. She's right. Depending on the provider, the drug, and the patient's insurance coverage, $10K might even buy you just one chemo infusion. Or half of one. And chemotherapy typically requires a lot more than one infusion. 

    Helen Walters points out that the issue has broad cultural impact, too:
  7. @xeni one of the biggest impediments to American innovation is that people stay in jobs they hate because of fear of no medical insurance
  8. A number of my followers shared their personal stories linking job struggles and cancer struggles.  For many, insurance is inextricably linked with employment. And employment in America is anything but secure.
  9. @xeni as a oral cancer survivor, every career move is first based on insurance. Everything else is now secondary.
  10. @xeni I have never been w/o insurance, have had well paying jobs my entire career yet may never fully pay for my lung transplant.
  11. @xeni my mom couldnt take leave from work so my dad could have medical coverage and chemotherapy. He died the night before her birthday.
  12. @xeni dad just diagnosed. No insurance, no job. Scary as hell.
  13. @marykvalle @chemobrainfog @xeni My wife's mastectomy was over $102K. Each chemo is $3K or so. Without insurance, we'd be bankrupt.
  14. @xeni It's been almost five years since my surgery and radiation treatment and I am still getting bills. It is literally never ending.
  15. @xeni @cwoodfield The day I lose coverage and it comes back is the day I walk in front of a bus...
  16. Your home or your life. Choose one.
  17. @xeni after my fiance's diagnosis, we ended up losing our house and are now in bankruptcy. And we had "good" insurance!
  18. @xeni Our friend @uxmike & his young family lost their home before he was taken by cancer. Am Canadian, was sickened that they had to choose
  19. Here are my wrists, a few days ago. When I walked in to the chemo clinic, before they hooked me up to my drip I was presented with a bill for more than a thousand dollars: my out-of-pocket, after insurance. I get a bill every two weeks, each time I go in for an infusion.
  20. I joke to my friends that I wear the wrist-band because I "HOPE" I can figure out how to cover all of the costs of my treatment—and the drugs needed to deal with the side effects of that treatment. 
  21. As a fellow traveler told me: if the cancer don't kill you, the treatment bills will. It's been devastating for me already & I'm insured.
  22. Chemo-nomics. Here's $500 worth of a drug that works, 3 doses, vs $100 or less of medical cannabis, many many doses. instagr.am/p/HZLJ8FSeBE/
  23. It's really hard on older Americans, at or past retirement age.

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Xeni Jardin

Madam Boing. Breast cancer isn't something I have, but something my body is currently doing. I tweet about this, and all that my mind is doing. [email protected]

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