Meaningful Use Workgroup Patient-generated Data Hearing
Project HealthDesign director's testimony encourages policy-makers to save space in the EHR for patient-generated data
- On Friday, June 8, 2012, Patricia Flatley Brennan, R.N., Ph.D., Project HealthDesign national program director, testified before members of the federal Meaningful Use Workgroup, as well as other members of the HIT Policy and Standards Committees and ONC.
Dr. Brennan's testimony focused on the business and technology challenges related to the incorporation of patient-generated data into the clinical electronic health record (EHR). Nikolai Kiriekno, co-project director for the Project HealthDesign Chronology.MD team, also testified during the hearing. His testimony focused on the need for standards for dynamic patient-engagement on mobile devices, as well as the need for access to open APIs in the EHR. Deven McGraw, J.D., M.P.H., Project HealthDesign regulatory and assurance advisory group member testified about related privacy and security challenges, and drew upon the experience of Project HealthDesign's five current grantee teams.
Listen to an audio recording of the meeting, view the agenda, or read written testimonies.
Here's a look at how the hearing unfolded: 
I'm at the Patient Generated Data Hearing at the Dupont Circle Hotel. #ONC #healthdata http://pic.twitter.com/JtvwB6gY- Panel 1 started out with a discussion about the uses of patient-reported information in managing health, and Kirienko voiced a patient perspective:
@NikolaiKirienko tells #onc HITPCS hearing - 5% of pts spend 50% of health$ - but must navigate the hc system via voice, but not often HEARD
"We should have a right to see [our medical record] when we need to see it -- not 30 days after." - @NikolaiKirienko #onc- Pts have wisdom @NikolaiKirienko says start with a DO NOT DO procedure list, like an allergy list, that ensures shared care control #onc
- Patients can act as a health information exchange of 1, says @NikolaiKirienko #onc
- Panel 2 followed up with a discussion about emerging practices related to patient-generated data:
- Panel 3 focused on policy issues surrounding the use of patient-generated data:
- @healthprivacy #onc getting into the EHR @prjhealthdesign common threads: a plan, assign pt gen data responsibility, educate pts, judgment
- #onc @PrjHealthDesign's Deven McGraw (@healthprivacy) leading off the PolicyPanel @ HITPSC - -privacy takes the fall for lack of motivation
