1. Incredible talk by ALS patient Eric Valor at #OSS12 on the need for open data and collaboration, all by eye movement: http://youtube.com/#/watch?v=aODvTAJ7PO4
  2. @alisonmarigold yes #altmetrics was in my deck but no time - we want to go super-alt on improved outcomes! #oss12
  3. Haplin Neurosciences is one of the first personalized virtual biotech startups, looking for viable therapeutic targets for ALS. #oss12
  4. Eric, ALS patient, is using eye-gaze software to answer attendee questions. He used it to create a video that we watched as well. #oss12
  5. @surfiving your talk at #oss12 has inspired me to contribute as much as I can to the #openscience movement. You are the epitome of COURAGE
  6. @surfiving 'now it is time to apply open data and open tools to medicine to find new therapies', #oss12 #openscience http://pic.twitter.com/CKlAf4R6
  7. @surfiving 's video speech one of the best exposition of #openscience #opendata. Can someone please provide a link? @RyanBethencourt #oss12
  8. Life span after diagnosis of ALS: 2-5 years. Again, there is NO TREATMENT. #oss12
  9. ALS patients have full mental capacity, but lose all voluntary muscle movements, trapping active mind in paralyzed body. No treatment #oss12
  10. Eric is the first citizen scientist test-patient for radical ALS treatments. He and partner @RyanBethencourt now presenting. #oss12
  11. @sgreene24 'Cancer commons is a clearing house for all the great information on cancer' #oss12 #openscience #openaccess
  12. Sarah Greene @sgreene24 perhaps #almetrics for incentives for researchers to collaborate. Looking forward to your rapid publishing #oss12
  13. Spent the last 2 hours in the #oss12 hallways, talking to folks, getting advice and asking more details questions.
  14. Gave a short overview of #SpaceElevator and asked about fully open, partly open or closed IP - Great feedback - Thank you #oss12!
  15. Answer to my previous tweet consensus models. People can donate their #cancer data & connect w people who have similar cancers #oss12
  16. Alan Black: do we have to resort to using Vit A used for cattle? Sole supplier of injectable Vit a doesn't have a operational plant #oss12
  17. #oss12 most drug "shortages" are predictable and preventable - purely driven by commercial interests, not patient interest
  18. #oss12 Allen Black talks abt how Genzyme screwed patients by rationing Fabryzyme (in US -full dose in EU) - argh! #badpharma
  19. Allen Black talking about drug shortages at #oss12 "Publication is not the last step, we should see our science in action" <This!
  20. The reason we're able to 3D print organs & tissue today, is because of openness. Allowed 2 disparate fields to merge. #oss12 cc @neworgan
  21. @alisonmarigold @openscience Agreed on custom lab hardware. Reminds me of 'Bad Science' by @bengoldacre. Can't reproduce = bad sci #oss12
  22. Me too. Rocks so hard to be part of it! RT @bkolko: open source hardware and open science make me optimistic about the future. #oss12
  23. @davidgljay we are scattered. In sparse networks, we do amazing things. In a global community, we will change the universe. #oss12

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Open Science Summit

October 22-23 (Sat & Sun) 2011 | Computer History Museum, Mountain View, CA

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