Hey #oss2011 people, if you're in town, there's a #openaccess seminar at Stanford you might be interested in: http://t.co/yk4jlHl1

where this runs into problems is (for ex) data from invasive procedures: come home from biopsy & repeat procedure on self? ugh. #oss2011

thinking on #oss2011, esp patient-info-access prblm. getting access IS important; also drives home importance of making own data directly.

Didn't get enough OA @ #oss2011? Join us for our #OAWeek webcasts tonight @ 8pm EDT & Wed @ 12pm EDT! Register here: http://t.co/SlogzPgc

Happy Open Access Week!! #oss2011 #OA

#oss2011=best conference I've been to in years, thanks @Agalmicist for making it all happen. Amazing speakers, great info, & attendees.

Openness is the Future of Science = #OSS2011 http://t.co/1mqPyq4O - Thank you all for terrific two days, which could be followed with ease:)

My favorite summary so far, from petermr's blog: Open Science Summit Summary: #oss2011 http://t.co/MjLGvPjT #openscience #openaccess

Open Science Summit 2011 - a remote summary http://t.co/086cWLDX #oss2011 Thanks to everyone!

To follow up on announcement at #OSS2011, link to donate is here: http://t.co/TNbqqGsh - please give what you can to support open science!

GREAT Open Science Summit conference. THANKS TO ALL THE PLANNERS, SPEAKERS, PARTICIPANTS! #OSS2011

Q: Patient access groups have not penetrated chemistry industry, at all. Why not? They should! #oss2011

@23andMe makes aggregate data available to collaborators & through publication as a start. Privacy is an issue if non-aggregate #oss2011

I've wished that I could get download the aggregated, anonymous survey question answers from @23andMe, too. #oss2011

an interesting Q: some @23andMe customers grant data access "for research" —but which researchers get access? Why no open access? #oss2011

Answer from #23andme: "it's a resource question". Well, you get money for keeping valuable information exclusive. #oss2011

next Q: when will @23andMe let ppl dwnld their *phenotype* data, too? (1st time MN has been asked; doesn't know.) #oss2011

MN, @lindaavey: @23andMe cust can dwnld data, share as will. But Q wants to know, can he dwnld ALL Parkinson's data, aggregated? #oss2011

And the answer from #23andme is: It would be nice to share the aggregated data freely, but in the short term, we "can't do it". #oss2011

Q is asking @23andMe how they balance "patients' right to data ownership" w/business model based on aggregating data. #oss2011

The all-important question to #23andme at #oss2011: Who takes credit for the aggregated data? Who gets access to the aggregated data??

Not sure what question the woman from @23andMe is answering, but it's not what the guy asked. #oss2011

Q: "@23andMe theoretically operates as a for-profit business…" #oss2011

Q is, how much commonality exists between rare diseases? how much rare disease research is generalizable? (do we know?) #oss2011

Something Boice just said makes me wonder if the RARE Project is focused most on diseases affecting children; parent-driven? #oss2011