Health

Multiple System Atrophy

Connecting MSA patients, supporting fundraisers, sharing research and stories, finding community, tips for caregivers

  1. New blog post: March is Multiple System Atrophy (MSA) Awareness Month, Research and Education are Desperately Needed bit.ly/Tb2sgk
  2. Please follow @colinkett. Colin has a terminal illness called multiple system atrophy and he really would like some followers.
  3. Phillip A. Low, MD and Joseph Y. Matsumoto, MD: Multiple System Atrophy Research at Mayo Clinic. bit.ly/l1XlTU
  4. " I hope that science discovers the causes soon, and then a cure for this illness, so that this mortal nightmare called multiple system atrophy can end."
  5. RT @RareConnect: Powerful new story on Multiple System Atrophy Community by Maria from Spain on living w/ this degenerative #raredisease http://bit.ly/Tjfmv6
  6. " Multiple System Atrophy health and social care professionals' survey"
  7. The Multiple System Atrophy Trust is conducting its first ever health and social care professionals’ survey. The... fb.me/1TH1Rt7PN
  8. Please support Brenda's Journey in this year's Parkinson Society Canada Superwalk. A former marathon runner living in Ottawa with family ties to Nova Scotia, Brenda now suffers from and is raising awareness for Multiple System Atrophy, a degenerative neurological disease for which there is no cure or treatment. My mother-in-law also had this disease and passed away in 1998 at only age 55. Please won't you help. psc.r-esourcecenter.com/Eve...
  9. " How prominent is this disease? Where does it originate? It’s devastating."
  10. "Mayo Clinic and 18 other leading medical research institutions nationwide are urging congressional leaders to maintain current funding levels for the National Institutes of Health (NIH)."  
  11. " Prize4Life launched a crowdsourced innovation challenge last week with a $25,000 prize attached, designed to apply the insights of data science to ALS. The challenge? Create an algorithm that predicts life expectancy within the ALS population."
  12. We want to get to 1,000 signatures!

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Emily Kotecki

Museum educator. Food blogger. Amateur fundraiser/awareness spreader for Multiple System Atrophy.

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