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Patient/Caregivers: Establishing Boundaries without Barriers (#hcbwb at #SXSWi)

I participated on a panel at #SXSW in the health track (#SXSWh) regarding boundaries, patient-physician relationships, and social media. It was a great discussion (disclosure: I'm biased!) with some great audience questions and conversations. Here's some of the tweets & some additional comments from me regarding the topic.

  1. There was a fantastic in-person audience, plus great participation online and lots of great questions.
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  3. SmallArmyAgency
    Multitasking and following the #hcbwb panel via hashtag - all about patient/caretaker relationships through social media
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  4. shanictaylor
    Kicking off day 3 of #SXSW at panel on Patients/Caregivers on Facebook #hcbwb. Includes @danamlewis, @EdBennett @EndoGoddess @drkkolmes
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  5. (Since I was talking about the patient perspective, especially around diabetes, I figured it was fair to use social media to share my health info for the morning.)
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  7. Ed Bennett, our moderator, kicked us off by talking about health & social media, plus his perspective of managing "The List" (one of the best data sources around hospital use of social media). 
  8. crgonzalez
    #hcbwb 900 SM sites being tracked at hospitals by Ed Bennett but he is noticing a leveling off of activity. Little provider to patient comm
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  10. We each introduced ourselves describing our experience/perspective on the panel. I'm a patient first, and someone who does social media/interactive/web for a non-profit health system second. (For those who don't know, I've had type 1 diabetes for 8+ years and celiac for 2+ years.)
  11. BetsyHubbard
    Check out Ed Bennett's terrific blog, esp his useful tracking list of hospitals on social media: http://ebennett.org/ #hcbwb #SXSWi
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  12. crgonzalez
    #hcbwb Lewis: uses SM to communicate her feelings and her med status in everyday life. How can we connect with patients using SM ethically?
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  13. mattcyr
    In the #hcbwb panel. @danamlewis talking about how her diabetes got her involved in social media.
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  14. VogeleLaw
    @danamlewis using social media to treat and manage diabetes, when it's relevant/appropriate. #hcbwb
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  15. JasonLotkowictz
    At Patients/caregivers on Facebook: Lewis says "social media can save lives" #hcbwb http://4sq.com/fZpmpd
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  16. Dr. Jen Dyer (@EndoGoddess), is a very active endocrinologist on social media, but she uses it differently than one might think. She describes her 'boundaries' as professionalism in practice.
  17. JackWestMD
    I've only known @danamlewis from #hcsm chat & from working w/her at @Swedish; now I'm learning how/why she got into it: as a pt. #hcbwb
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  19. Dan Goldman, legal guru at Mayo Clinic, brought the legal perspective.
  20. PracticalWisdom
    Excellent (?) Legal Issues RT @crgonzalez: #hcbwb Goldman: What do you do with negative comments on SM? Web 2.0 is a dialogue #hcbwb
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  21. Dr. Keely Kolmes has a different perspective in private practice & mental health. 
  22. jason_schultz_
    #sxsw #hcbwb Mayo Clinic's trademark lawyer acknowledges that Cease & Desist letters approach the Internet as a monologue, not a dialog.
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